Belonging to your community

Figures earth, photo by Sanja Gjenero, Zagreb, Croatia, community activitiesA natural need of a human being is to belong to another and to a community. Belonging to your community is far more important than people realise. Without that we can be tempted into isolation. The community can be your family and friends sharing similar interests, or your church group, or your self help group. Some of the those interests can be doing voluntary work for charitable and benevolent projects, or hobbies and sports. The learning community is another powerful area involvement. Even if your community is not a church group, belonging to a community is another form of spirituality.

how wonderful a project to see schools promoting
a marathon walk or something similar where the students
collect sponsor signatures to raise money for a charity
the excitement experienced by
the participant and the supporters
with the outcome of raising funds
or other donations which benefit
people, animals or the environment
ultimately the process rippling out globally
such a simple beginning with a profound ending
which can be duplicated over and over everywhere

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E.B. (Epidermolysis Bullosa)

DebRA Queensland logo, Butterfly DayIn Australia you can help by reaching the support people for E.B (Epidermolysis Bullosa) at DebRA Queensland. As a result of my post about Butterfly Day and E.B. there was a comment by Gena which I believe will help the E.B. campaign, so I’m including her comment in full here. Hopefully this will inspire people to become active in Gena’s work too. Children especially suffer such pain and life threatening illnesses because of Epidermolysis Bullosa so please consider pledging your help.

Comment by Gena:

Hello! I receive “google alerts” for anything about EB, and your blog arrived in my alert today. I just wanted to write and say “THANK YOU!” for spreading awareness about EB! My Mom suffered from Recessive Dystrophic EB, Hallopeau-Siemens subtype. She was a marvelous woman, and a warm and caring mother to me and my two siblings. She is one of the few with her severe subtype to have children, and we are all EB-free. She lived to the age of 65, and serves as an inspiration to others with EB because of her long life and courage in the face of this disease. She endured many infections from chronic wounds, had many surgeries to improve her mittened hands, developed squamous cell carcinoma which resulted in amputation of an arm and a leg, and yet she loved life and was in all ways a child of God. I wrote an article after her death for the DebRA organization, which you can view here: www.thedenslaws.com/personalstories.html

In the U.S., I am working with volunteers to pass a Bill for National EB Awareness Week, Bill H.RES.335. The companion Senate Bill, S.RES.180, has already passed. If one of your readers knows folks in the U.S., they can write, fax, email or phone the House Majority Leader, Speaker of the House, and Majority Whip, and ask them to bring this Bill to a vote under the 109th Congress, before they finish in December. They can ask the same of their own Congressperson, and they can get all contact information at www.house.gov or www.congress.gov.

I also work with DebRA International, helping people in countries to find resources. Currently, I’m working with a family of four siblings in their 20’s in Iraq who have no bandages or wound care treatment, to go to Israel to be diagnosed and receive instruction on bandaging, and a couple in Pakistan with a 2-year-old son – all have a more severe subtype of EB. There is just not enough help for these people, and spreading awareness as you have done is a great gift to our community!

Thanks for the opportunity to leave a comment! Gratefully, Gena Gruschovnik

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Happy times again

Happy Happy Joy Joy photo by Tom de Bruin, Binfield UK
Happy Happy Joy Joy photo by Tom de Bruin, Binfield UK

Life has ups and downs. Happiness brightens our days and then out of the blue come problems and pain which don’t seem to want to go away, and that darkens our days. Then we hope that the light at the end of the tunnel is sunshine and not an oncoming train. Eventually there are happy times again with sunlight and joy. We wonder why we felt it was so hopeless when this happens over and over throughout Life – and that is normal.

his eyes were happy and his smile was wide
he had happy times again
together we remembered how miserable
his life had been recently which had given him
the look of a victim, a miserable man
everything he touched turned sour until
things changed and he was back to his old
successful ways full of luck and happiness

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Don’t give up on love

Love photo by Ann-Kathrin Rehse, Göttingen, Germany happinessLove is our own emotion to do with as we please. We feel it for someone or we stop feeling that way. It is good when we love someone and it is painful when they stop loving us but they don’t take away the ability for us to love. It just causes us to withdraw for a while to heal our love wounds. Don’t give up on love when that happens because in time love blooms again and a powerful lesson is learnt too.

he loved her more than life itself
and would do anything for her to be happy
nevertheless it was not enough and she
left him stranded with the kids, toddlers at that!
then she returned only to leave again
this time with another in the middle of the night
she took one child and left the other
he was a good father as a sole parent
but he used to say “one life, one love”
and I would say “don’t give up on love”
one day he fell in love again
and how great it was to see his happiness

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the loss of a love

when a lover says that it’s over
the shock and anger is unbelievable
“it’s not true, it’s a nightmare, how could it be?”
then the bargaining adds to the turmoil
“could things have been handled differently
and the loss of a love been avoided?”

getting through this phase does not guarantee
that the acceptance of the loss is reached
unfortunately this pain can go on in cycles
nevertheless it does get better
and we move on to happier and more fulfilling times
having hope for that gets us through the worst moments

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